Yesterday Amber had a low fever. Today it is higher. She was agitated last night and not comfortable. This means she didn't sleep well, she shakes and just looks miserable. I brought in a weighted blanket that seems to calm her. I have asked for her sedative to be raised again. She isn't getting too much, they just had her on such a small dose over the last few days, along with some extras here and there. Still no crying. She is taking baby steps in getting better. The doctor spent about an hour with me today. I cried and poured out my heart to him. I can't say enough about the wonderful care she is receiving but.........I WANT MORE. I want her better. I want her suffering to end. I am sad. I am very sad. I am tired of this all. I want my girl back. I want to take her home better than when she came.
The doctor told me he treats Amber as if she is his own child. He cares and he wants her better too. My thoughts are all over the place. There are decisions to be made. Today is a test to see how she does on the vent as they changed some settings and it will be forcing her to work harder. He encouraged me to not give up. She CAN come out of this and go home. I am still believing and praying.
I am continuing to remind Amber to pray for herself and fight! Thank you again for your encouraging words and prayers. It does make a difference. And thank you to my friends in Kenya for your prayers and kind words!
Here is a pic of her with cookie monster during better days. I ache to see that smile again.
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