Amber is doing well. She struggles a little with breathing, but with each hour off the vent, she is doing better. She has lots of secretions from her lungs that cause breathing to be more difficult. During the night she had an hour of lots of struggling to breathe and coughing and gagging. They are continuing to take her off lots of her meds, especially the sedatives. She is starting to cry a little, but is asleep most of the time. This afternoon we are going to sit her in her wheelchair!! They want her up and moving around.
I can't stop smiling. I can't stop reliving some of the moments of yesterday. It all is a dream....a very good dream. There was a team of nine medical professionals to take her off the ventilator. I had to leave the room. They told me it would take about 25 minutes. Ten minutes later the doctor came out and gave me a thumbs up. I didn't really hear anything he said after that. I finally let the tears flow, but this time they were happy tears!! I do recall him saying she has an extra large tongue, but other than that I didn't hear a word!!!
Amber still has a long recovery. We will be in ICU for awhile. I don't know if she will be home by Christmas, but none of that matters. There is so much I could say, and maybe I will in the coming days, but know this.....God is good.....all the time. Our day could have ended a lot differently yesterday and that would have been ok too. It wouldn't have been easy and it wasn't what we wanted, but it would have been accepted. We are just praising God for this gift he gave us. My favorite doctor was here with us yesterday through it all. He came in many times through the day to remind me of how he told me not to give up. He was instrumental in steering us in the right direction. I know God used him to keep me positive and fight through all the craziness. He never gave up on us and pushed me to fight and believe for her when I thought I couldn't take it anymore.
Thank you for your prayers. Every one of you had a part in this very happy ending. But really it's just the beginning. Amber is going to continue to have struggles in her life. I hope she never has to have a surgery again. We will take one day at a time. Who could have possibly known a little girl that can't walk o
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